The latest news and events from ECRIN and its partners

IRDiRC Announces The Creation of Regulatory Science Committee to Tackle Regulatory Challenges in Rare Disease Research

22 September 2022

IRDiRC, a global collaborative initiative with the vision to enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention, today announced the formation of the Regulatory Science Committee (RSC).

Launch of REMEDi4ALL

1 September 2022
REMEDi4ALL launched today with the aim of making a major leap forward in drug repurposing. This promising approach to drug development consisting in the identification, testing, and validation of new therapeutic indications for existing medications, is a developing field but faces numerous barriers and systemic inefficiencies. Still, its potential to significantly bring down times and costs of drug development -it focuses on already approved, discontinued, shelved or investigational therapeutics- makes this novel strategy attractive for rare and neglected conditions, cancer, emerging public health threats such as COVID-19 or new drug combinations. It also translates into more sustainable health systems.  

ECRIN Annual Report 2021

27 June 2022

We are very proud to present to you the ECRIN Annual Report 2021! As you may notice right away, the Annual Report is presented to you in an entirely new format. Namely, the size changed from an A4 to a square format, so that it will better fit your screens.