Facilitating European Clinical Research

ECRIN is a public, non-profit organisation that links scientific partners and networks across Europe
to facilitate multinational clinical research. We provide sponsors and investigators with advice,
management services and tools to overcome hurdles to multinational trials and enhance collaboration.

Our Work

We provide our 12 member and observer countries with diverse trial support services
and contribute to 'infrastructure development' projects with additional European and international partners.

ECRIN in Numbers

Member & Observer Countries

Million citizens represented

Trials in ECRIN portfolio

Average # of countries per trial

Events

Date:

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.

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Putting rare diseases policy into action

European policies are influenced by the priorities of their member countries. Rare diseases are featured on the agenda of the upcoming Trio of EU Council Presidencies, held by France, Czech Republic and Sweden between January 2022 and June 2023. ECRD 2022 has been designated as an official event of the 2022 French Presidency of the Council of the European Union, which demonstrates considerable support to keep rare diseases as a priority.

On an international level, the United Nations’ adoption of a Resolution on Addressing the Challenges of Persons Living with a Rare Disease in December 2021 also creates the enthusiasm and opportunity to align the European and UN agendas.

It is therefore now the time to consider a new policy framework for Rare Diseases in Europe. This framework would provide an opportunity to set three ambitious goals and a number of sub-targets to tackle Europe’s challenges:

1. Ensuring healthy lives and promoting well-being for all people living with a rare disease at all
2. Reduce inequality within and among countries by focusing on equity for people living with a rare disease
3. Building resilient infrastructure, promoting inclusive and sustainable industry and forstering innovation for people living with a rare disease

Date:

DATE: 12 July, 2022 – 10AM-11:30AM CEST, Online Event

The ISIDORe consortium has recently launched its first call to support research on SARS-CoV-2 and COVID-19It provides free of charge access to more than 300 services from ISIDORe’s integrated portfolio of cutting-edge research services dedicated to epidemic-prone disease research.

It will follow in coming weeks with a new access call dedicated to the Monkeypox virus.

The ISIDORe coordination team is pleased to launch the first series of webinars to provide you with information about the access calls and application modalities, as well as to answer your questions.

Speakers:
Audrey RICHARD, Director of Operations ERINHA
Claire CONNELLAN, ISIDORe Project Manager

Participation in the event is free, but registration is required.

Participants will be able to submit questions during the webinar by using Zoom’s “Q&A” feature. You may also submit them in advance by sending them to “contact@isidore-project.eu”

Date:

A one-and-a-half-day workshop is planned to take place in Kenya on the 13th and 14th July 2022 and will be hosted by the National Commission for Science Technology and Innovation (NACOSTI. The stakeholder workshop aims to bring together key stakeholders from the East African region (Kenya, Tanzania, Uganda, Rwanda and Ethiopia)

The objective of the meeting will be to discuss the Personalised Medicine agenda in East Africa and convene a regional committee to identify regional specific health needs to develop the potential for PM, as well as the challenges and opportunities for collaboration with Europe.

The results of the workshop will feed into the project activities of carrying out the identification of PM needs in Africa, using a region-based approach.  The final expected outcome will be to define an Action Plan for EU-AU collaboration in PM.

At the same time, the workshop will help participants to better understand the potential benefits of developing PM in the region and what are the key enablers that can facilitate this development, raise awareness about the opportunities for cross border collaboration and stimulate networking activities within East Africa stakeholders in the field of PM.

Attendance to this this event is by invitation only.