CANDLE Project – European Survey on Needs, Challenges, and Priorities for Cancer Data Utilisation
CANDLE Project – European Survey on Needs, Challenges, and Priorities for Cancer Data Utilisation
Help shape how cancer data is used across Europe!
Are you a cancer data user (researcher, clinician, innovator, policymaker) or a data holder (registry, hospital, biobank, infrastructure, public authority)?
We invite you to take part in a European survey contributing to the co-creation of recommendations and best practices for cancer data (re)utilisation - from data preparation and quality, to interoperability, governance, and secure cross-border reuse - and to help identify the core skills and key technologies needed to set up National Cancer Data Nodes (NCDNs).
NCDNs are federated hubs, responsible for the standardisation and harmonisation of data procedures within their country and/or region, and providing the digital tools for research collaboration – all aligned with national European Health data Space (EHDS) roles.
The survey is part of CANDLE, an EU-funded project supporting countries in setting NCDNs. Your input will help ensure that future cancer data infrastructures respond to real needs, address practical challenges, and support impactful research, innovation, and policy-making.
Why participate?
- Share your experience and challengesHelp prioritise what matters most for cancer
- data reuse
- Contribute to shaping national and European recommendations
- Join a broader expert community shaping the future of cancer data
The survey is open to experts across Europe and is part of a wider consultation process, which will include follow-up validation activities, such as a validation questionnaire and/or expert workshops, to refine and prioritise the recommendations.