ICTD 2023 - Panel: Future of patient participation: conventional, hybrid, fully decentralized?

The panel included Rachel Copland, Ditte Zerlang Anderson, Ly-Mee Yu, Rafal Staszewski, and addressed a variety of hot topics on the organisation and participation of decentralised clinical trials (DCT). A few key ideas include:

 

  • Participants must be the focus of the research and PPI must be taken into consideration from the start
  • Education with all stakeholders is necessary
  • Clear communication is essential
  • The regulators are working to support DCTs but the current landscape needs greater harmonisation
  • Efficient and safe use of patient data is essential for all elements of the DCT