Beyond 1 Million Genomes

Funding programme: Horizon Europe(N 951724)

Budget: €4M

Coordinator: ELIXIR / EMBL-EBI

Duration: 3 years (June 2020 - May 2023)


The Beyond 1 Million Genomes (B1MG) consortium will provide coordination and support to the 1+ Million Genomes initiative (1+MG), which is based upon the commitment of 21 European Member States and Norway that have signed the Declaration ‘Towards access to at least 1 million sequenced genomes in the EU by 2022’.

B1MG will go ‘beyond’ the 1M genome target and ‘beyond’ the 21 signatory countries. The project will collaborate with an array of international initiatives and consult a range of stakeholders to support the creation of a pan-European genome-based health data infrastructure, encompassing data quality and exchange standards, access protocols and legal guidance.

Recommendations will be translated to a B1MG maturity level model that provides concrete guidance on the steps required to implement personalised medicine, a healthcare approach that takes into account a person’s genetic make-up, at local, regional and national-scale.

ECRIN's role in B1MG

In B1MG, ECRIN is involved in considerations of Ethical, Legal and Societal Issues in genomic data sharing and reuse. ECRIN coordinates the outreach to relevant stakeholders and sets minimal standards and best practice guidelines for consent forms to allow the use of genomics data in a pan-European genome initiative.