PedCRIN webinar: Methods for the engagement of youth and families in paediatric clinical trials-Towards patient-centred studies

Published on 30/03/2021

Our second session of the PedCRIN webinar series will be focused on patient engagement in clinical research, specifically on the involvement of families and young people. The speakers are Eric Vermeulen from VSOP (Dutch Patient Alliance for Rare and Genetic Diseases) and Begonya Nafria from FSJD (Sant Joan de Déu Research Foundation).

Brief summary

In order to develop efficient paediatric clinical trials, it is essential to involve patients and families. Within the PedCRIN project, we have analysed different models of involving patients and families in academic studies. In this webinar, we will share lessons learned through the application of these models and will explain how you can plan patient involvement in your studies.

Date and Time

Wednesday, April 28th 2021

1:00 PM CEST

Registration

Free registration on this link.