The Life Science Research Infrastructures and Patients’ Associations have published a joint response to the public consultation on common European data spaces: Facilitating health research and protecting citizens’ rights: Life Science research infrastructures and patient advocates joint reply to the “Legislative framework for the governance of common European data spaces.”
The response analyses the close relationship between public health and research in the era of digital health and health research data. It highlights the pre-existing harmonizing forces that are vehicles to best practices and cross-border expertise. Life Science Research Infrastructures can help address subjects that have not yet been considered such as ethical, legal and societal issues. Moreover, their early participation can ensure for “long term sustainability of the policy options mentioned in the impact assessment”.