International Clinical Trials Day (ICTD) 2017

Data sharing and reuse: attitudes and practices in multinational clinical research

Together with the Portuguese scientific partner PtCRIN, ECRIN organised the ICTD 2017 on May 19 2017 at Infarmed in Lisbon, Portugal. ICTD 2017 brought together investigators, patient representatives, national authorities, health technology assessment specialists and other stakeholders involved in multinational clinical studies from Portugal and across Europe. The aim was to engage participants in discussions on issues related to data sharing and re-use in particular.

Discover the ICTD 2017 agenda below.

ICTD 2017 Speakers topics

Jacques Demotes Director General, ECRIN H. Luz Rodrigues Representative of the Portuguese Ministry of Health Miguel Castanho Vice-president, Portuguese Foundation for Science and Technology (FCT)	Opening & Introduction ICTD 2017
Jorge Rodrigues Pharmacist, Portuguese National Authority of Medicines and Health Products, I.P. (INFARMED)	Access to treatment for hepatitis C virus infection in Portugal
Christian Ohmann Network Committee chair, ECRIN	Individual patient-level clinical trial data sharing
Barbara Bierer Faculty co-chair of the Multi-Regional Clinical Trials Center of Harvard and Brigham and Women's Hospital (MRCT Center)	Added value and cost of data sharing
Trish Groves Director of academic outreach and advocacy for BMJ, editor in chief of the online only journal BMJ Open , and honorary deputy editor of The BMJ	Incentives for data sharing
Pedro Silvério Marques Patient representative, Portuguese National Ethics Committee for Clinical Research (CEIC)	Clinical trial data sharing: the patient’s perspective
Ana Miranda Portuguese Oncology Institute (IPO-L); coordinator, South Regional Cancer Registries (ROR-Sul)	South Regional Cancer Registry – strengths and limitations
Jacques Demotes Director General, ECRIN Helder Mota Filipe Faculty of Pharmacy, University of Lisbon (FFUL); vice-president, INFARMED	Final discussion and wrap-up