The latest news and events from ECRIN and its partners




RE(ACT) Congress & IRDiRC Conference 2021

13 January 2021
15 January 2021

International Congress of Research on Rare and Orphan Disease

hosted by the Blackswan Foundation, IRDiRC and EJPRD are hosting the in a joint online event the RE(ACT) Congress & IRDiRC Conference 2021. 

The conference will bring together scientific leaders, patients and policy makers to advance research on rare and orphan diseases. 

Register before the 31st of December for a preferential rate:

EULAC-PerMed 3rd Annual Summer School

24 November 2020
26 November 2020

The 3rd Annual Summer School hosted by EULAC-Permed is going virtual. It will address the implementation research in personalised medicine: ethical, legal and social aspect perspective. 

Applications are now open until October 7th. 

For more information visit the website

EULAC-Permed: 2nd Technical workshop

17 November 2020
18 November 2020


EULAC-Permed will be hosting their second technical workshop. This workshop aims to address the ethical, legal and social aspects in personalised medicine. 

Objective of the workshop: To exchange insights on key ethical, legal and social issues in personalised medicine (PM) research and implementation in Europe and in Latin America and the Caribbean (LAC) and identify recommendations for future bi-regional collaborations in the field of PM.