ERA4Health 12th Webinar - From Patients to Research Partners: the Power of Patient-Driven Research
ERA4Health will host its 12th Webinar on December 3rd 2026, at 11 CET.
From Patients to Research Partners: The Power of Patient-Driven Research. The story of the PLNheart organisation with Pieter Glijnis.
"Drawing on his own journey – from living with phospholamban (PLN) cardiomyopathy and receiving a heart transplant to founding and leading a patient foundation dedicated to finding a treatment – Pieter will share his personal story on how patients can become genuine partners in research.
The webinar will explore topics including:
How a patient organisation can initiate and accelerate research on a rare inherited disease
Building collaboration between patients, families, researchers, clinicians and funders
The role of a patient organisation as a partner in research consortia
Mobilising funding and public support for research
Lessons learned: what meaningful patient partnership requires, and where its challenges lie."
