2nd REMEDi4ALL Multi-Stakeholder Meeting (MSM) "Patient Centricity on Osteogenesis Imperfecta (OI) Research"

Bologna, Italy (or online)
13/06/2024 
remedi4all MSM flyer

Join the Multi Stakeholder Meeting
REMEDi4ALL invites all stakeholders in the osteogenesis imperfect (OI) research community to join us for a day of learning, discussion, and inspiration.

We welcome clinicians, academics, patients and patient representatives, pharmaceutical companies, regulators, payers, health economists and all interested in OI and Rare Bone Diseases research. Together, we will discuss and develop patient centric approaches to research and medicines development for OI.

Our MSM will:

  • Share information and advance learning, in a pre-competitive and cooperative setting
  • Develop constructive dialogue between all stakeholders
  • Facilitate collaboration and knowledge exchange
  • Identify current hurdles and propose solutions to ensure patient centricity in OI research
  • Publish and disseminate the meeting outcomes to a broader community


The Power of Patients
The patient’s voice is at the heart of this meeting. The OI community and the REMEDi4ALL Patient Advocacy Group have played integral roles in shaping the content and format of this event.

We wanted to ensure that the patients’ perspectives, experiences, and preferences guide our discussions and are at the forefront of OI research and therapeutic development

Agenda
For information on the agenda and speakers visit the event website.

Registration
To register for the event visit the event registration page.